{"id":3783,"date":"2020-10-22T16:22:39","date_gmt":"2020-10-22T16:22:39","guid":{"rendered":"https:\/\/eczemahelp.ca\/blog\/racontez-votre-histoire-se-defendre-face-a-leczema\/"},"modified":"2024-12-19T20:53:06","modified_gmt":"2024-12-19T20:53:06","slug":"racontez-votre-histoire-se-defendre-face-a-leczema","status":"publish","type":"post","link":"https:\/\/eczemahelp.ca\/fr\/racontez-votre-histoire-se-defendre-face-a-leczema\/","title":{"rendered":"Racontez votre histoire : Se d\u00e9fendre face \u00e0 l’ecz\u00e9ma"},"content":{"rendered":"

T\u00e9moignage de Kyle Bruner, atteint de dermatite atopique s\u00e9v\u00e8re<\/h1>\n

La SCE a invit\u00e9 Kyle Bruner \u00e0 raconter son exp\u00e9rience avec une forme s\u00e9v\u00e8re de dermatite atopique (DA), couramment appel\u00e9e \u00ab\u00a0ecz\u00e9ma\u00a0\u00bb. Kyle est b\u00e9n\u00e9vole pour la SCE depuis 2019; vous l’avez peut-\u00eatre d\u00e9j\u00e0 entendu s’exprimer lors de l’une des s\u00e9ances \u00e9ducatives \u00ab Vivre avec l\u2019ecz\u00e9ma \u00bb tenues par l’organisme.<\/p>\n

\"\"\u00ab Je m’appelle Kyle et je vis \u00e0 Sarnia, en Ontario. Je suis atteint d’ecz\u00e9ma mod\u00e9r\u00e9 ou s\u00e9v\u00e8re sur environ 80 \u00e0 90 % de mon corps, depuis que j’\u00e9tais un tout jeune b\u00e9b\u00e9. J’ai consult\u00e9 de nombreux m\u00e9decins \u00e0 Sarnia, \u00e0 London, \u00e0 Toronto et \u00e0 Chicago afin de tenter de trouver un soulagement. Avant, je sentais que j’\u00e9tais seul au monde \u00e0 souffrir d’ecz\u00e9ma mod\u00e9r\u00e9 ou s\u00e9v\u00e8re, et je croyais que personne ne comprendrait jamais \u00e0 quel point la vie avec cette maladie pouvait \u00eatre difficile.<\/p>\n

Il y a trois ans, j’ai commenc\u00e9 l’\u00e9cole secondaire, et j’ai connu une pouss\u00e9e d’ecz\u00e9ma en raison du stress et de l’uniforme en polyester que je devais porter.\u00a0Les autres enfants me traitaient de noms, prenaient des photos de ma peau et m’intimidaient.\u00a0Mes enseignants ne semblaient pas comprendre la situation et croyaient que je pouvais juste faire dispara\u00eetre ce qui \u00e9tait \u00e0 leurs yeux qu’une simple \u00e9ruption. Mais je ne pouvais pas : c’est tellement plus qu’une simple \u00e9ruption!<\/p>\n

Mes parents ont trouv\u00e9 la Soci\u00e9t\u00e9 canadienne de l\u2019ecz\u00e9ma, et nous avons particip\u00e9 \u00e0 une s\u00e9ance \u00e9ducative \u201cVivre avec l\u2019ecz\u00e9ma\u201d, \u00e0 Toronto. Un des conf\u00e9renciers \u00e9tait un jeune homme qui a parl\u00e9 de son parcours et de combien sa vie avait chang\u00e9 depuis qu’il prenait un nouveau m\u00e9dicament biologique. Cette m\u00eame ann\u00e9e, je suis all\u00e9 \u00e0 un camp d’\u00e9t\u00e9 rempli de combattants de l’ecz\u00e9ma, comme moi. J’ai \u00e0 ce moment senti un soulagement, car j’\u00e9tais d\u00e9sormais entour\u00e9 d’une grande famille regroupant des personnes de partout dans le monde qui savaient exactement ce que je vivais.<\/p>\n

Depuis, j’ai particip\u00e9 \u00e0 un second camp, commenc\u00e9 un nouveau plan de traitement et particip\u00e9 \u00e0 deux r\u00e9unions de d\u00e9fense d’int\u00e9r\u00eats o\u00f9 j’ai parl\u00e9 des r\u00e9percussions qu’a l’ecz\u00e9ma sur tous les aspects de la vie d’une personne.\u00a0Je dois encore composer avec des pouss\u00e9es, des infections, la d\u00e9pression et l’intimidation, mais gr\u00e2ce \u00e0 l’aide de la collectivit\u00e9 de l’ecz\u00e9ma je peux militer pour moi-m\u00eame et les autres. Je ne sens plus que je dois cacher mon ecz\u00e9ma.\u00a0Je vais militer pour sensibiliser les gens, obtenir de meilleurs traitements et avoir un acc\u00e8s \u00e0 de meilleures options de traitement afin que les autres n’aient pas \u00e0 passer par tout ce que j’ai d\u00fb passer. Ils sauront que quelqu’un d’autre est pr\u00e9sent et pourra les \u00e9couter.\u00a0\u00bb<\/p>\n

La SCE remercie sinc\u00e8rement de nous avoir racont\u00e9 son histoire et pour tout ce qu’il fait pour faire valoir les droits des Canadiens atteints d’ecz\u00e9ma.\u00a0Suivez Kyle sur Instagram \u00e0 @scratchthat19.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

T\u00e9moignage de Kyle Bruner, atteint de dermatite atopique s\u00e9v\u00e8re La SCE a invit\u00e9 Kyle Bruner \u00e0 raconter son exp\u00e9rience avec une forme s\u00e9v\u00e8re de dermatite atopique (DA), couramment appel\u00e9e \u00ab\u00a0ecz\u00e9ma\u00a0\u00bb. Kyle est b\u00e9n\u00e9vole pour la SCE depuis 2019; vous l’avez peut-\u00eatre d\u00e9j\u00e0 entendu s’exprimer lors de l’une des s\u00e9ances \u00e9ducatives \u00ab Vivre avec l\u2019ecz\u00e9ma \u00bb […]<\/p>\n","protected":false},"author":4,"featured_media":2430,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[54],"tags":[],"class_list":["post-3783","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-vivre-avec-leczema"],"acf":[],"yoast_head":"\nRacontez votre histoire : Se d\u00e9fendre face \u00e0 l'ecz\u00e9ma | Eczema Society of Canada<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/eczemahelp.ca\/share-your-story-standing-up-to-eczema\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Racontez votre histoire : Se d\u00e9fendre face \u00e0 l'ecz\u00e9ma | Eczema Society of Canada\" \/>\n<meta property=\"og:description\" content=\"T\u00e9moignage de Kyle Bruner, atteint de dermatite atopique s\u00e9v\u00e8re La SCE a invit\u00e9 Kyle Bruner \u00e0 raconter son exp\u00e9rience avec une forme s\u00e9v\u00e8re de dermatite atopique (DA), couramment appel\u00e9e \u00ab\u00a0ecz\u00e9ma\u00a0\u00bb. 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