Finding Positivity in the Struggle: Priscilla’s Journey with Eczema Flares

Staying Positive Through Eczema Flares

I was born with eczema, so I’ve had it all my life. When I was young, I just lived through the flares of eczema, following my parents’ instructions, “Don’t scratch!” and “Put this lotion on.”
I would have flare-ups that were concentrated inside my arms, behind my knees and then above my lip. It didn’t spread; it was always in the same spots. Suddenly, in my third year of university, my skin flared up badly when the seasons changed. It was the worst flare that I’ve ever had in my life. It was in the middle of the school term, so navigating the challenge was very difficult.

I became self-conscious about my skin, and I’d only wear oversized t-shirts or hoodies to cover up when my eczema was flaring. I was getting it on my shoulders, chest, and back, which was new because it had only been concentrated on those specific spots all my life. This flare took a big mental toll on me.

I knew I needed to find some different strategies to manage my eczema beyond prescription treatments. I had to make significant lifestyle changes; I tried many different skin products and changed my diet to see if that helped. I stopped showering with very hot water, and it was challenging in the winter. I got used to showering in barely warm water after. There is also a financial burden with having eczema, as moisturizers and skin care products can be expensive.

I begged my family doctor to refer me to a dermatologist when my skin didn’t get better, but she refused to refer me. Whenever I made the request, she would simply give me another topical treatment. I didn’t know other eczema treatments outside of topical steroids even existed. I only learned about other drug treatments through talking to other eczema sufferers from different provinces. I live in British Columbia, and it’s unbelievable that I’m suffering and can’t get access to the treatments I need.

I had to figure out how to navigate managing my flares, and I did figure out a routine that worked for me. I still go through a lot of moisturizers, and I still have good days and bad days, but my eczema is under good control. It’s been more good than bad now. Eczema is normal for me now; I’m just living with it.

I’m grateful to have found ESC and to be involved as a volunteer because it allows me to turn my challenges into something meaningful. If I have to face this journey, at least I can use it to bring hope and positivity to others navigating similar struggles.

ESC sincerely thanks Priscilla for sharing her story. If you or your child is struggling with eczema and needs urgent care, go to your nearest emergency department. If you need support, email ESC at info@eczemahelp.ca or connect with us through our social media channels.

January 2025

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