Growing up with eczema: Tanya’s story and struggles
Long-time volunteer and ESC ambassador Tanya shares her journey of growing up with eczema. She opens up about her challenges, the strategies that helped her manage her condition, and what a typical day looks like. Her story offers hope, practical advice, and reassurance to those currently struggling with eczema that help and support are available.
“I grew up in a time when there wasn’t a lot of exposure to eczema. Growing up in Toronto, I had access to really great dermatologists, but I was the only one in my family who had it, and having a moderate to severe case, was very difficult for my family to navigate. I also grew up when Google wasn’t a thing and resources like Eczema Society of Canada didn’t exist. My family struggled with how to manage my eczema.
When I was growing up, the treatment was very medical-focused. My doctor would say, “These are your topical creams; this should help.” There was no additional information, directives or tips – “You could try putting ice on the skin or have her wear gloves in her sleep so she doesn’t scratch until she bleeds.” Little suggestions like that would have been helpful. Even asking, “How is her sleep?” and “What is her mood like? “Is she crying all the time?” It would have been supportive and acknowledged that this condition is more than just the skin symptoms.
The burden rested on the caregiver, and it was the responsibility of my parents to understand the condition. They would slather me with all the creams, hoping the eczema would disappear. At that time, a lot of our doctors said don’t worry; it should dissipate or go away when she hits puberty. So we waited for that magical day when I was 12 or 13. That day came and went. My eczema persisted.
It got worse because the itch-scratch cycle habit of itching creates a wound that creates stress and no sleep; itching continued and worsened in high school. I was lucky not to grow up in an age of social media, but there was still a lot of pressure to look a certain way, and I wanted to hide my visible marks and wounds. I would wear full-length sleeves and turtle necks in the summer. I kept my winter jacket on in class because I didn’t want to take it off, and I was so wounded and itchy. That wasn’t easy.
Life was challenging for both my parents and me. Fortunately, Eczema Society of Canada is there to help navigate these challenges, providing a platform for patients to share their stories. Doing so, they help educate others, advocate for improved treatments, and promote better care for those living with eczema.”
ESC sincerely thanks Tanya for sharing her story. If you or your child is struggling with eczema and need urgent care, go to your nearest emergency department. If you need support, or would like to share your story email ESC at info@eczemahelp.ca.
January 2025
